Dementia: the very idea raises fears about the loss of control, loss of beloved memories, loss of self. Is a person who is deep into dementia still sentient, still conscious? If we lose our ability to connect with who we are–let alone with other people–have we misplaced whatever it is we call consciousness, or mind?
Yet no one who has interacted with a person who has dementia would say the person has no consciousness. It is, instead, an altered consciousness: sometimes a loss of ego or sense of self in the world, or the disintegration of social or emotional “filters,” or a series of cognitive gaps that collapse into fugue, fears, or blankness. There are people who lose everything but the distant past, and people who lose everything but the present moment. Dementia has many causes and takes many forms. We do not understand it, and that creates fear.
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